Portal de Cartagena
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The aim is to raise funds for this little Cartagena suffering rare disease syndrome Schimke |
Cartagena is cited Sunday with Juan Jimenez Street, better known as Johnny, a child who suffers from 4 years Schimke syndrome, a rare disease with very few cases in the world.
In fact, this is the only cartagenero there today throughout Europe with this pathology.
Hence the Sunday organize a charity match to help this kid, in which a group of famous TV will become players for a few hours.
The Central Pavilion Wsell Guimbarda hosting this sporting event will be held at 18 am and organized by the Spanish Association Displasias à "seas Minority (AEDOM), together with the cooperation of the City of Cartagena and several local entities and businesses.
The ticket for this meeting is $ 5 and can be purchased at La Marina Seafood, Pizza Roma, Shack Juncos, Zenith Mall and on the phone 674 708 330.
It has also enabled a row 0 for those who want to collaborate with this initiative and help Juanico (La Caixa-2100-4056-79-2200100397).
It's a perfect opportunity to raise funds in order to help this kid has always been linked to sport our city, explained the Councillor for Sports, Diego Ortega, during the presentation of the party this morning at the Carthagonova Stadium.
Also attending President FUTSAL Cartagena, Roberto Sanchez, who encouraged citizens to participate in this meeting.
This is an opportunity also to meet in person to a group of celebrities who have participated in competitions such as Big Brother TV, Women and Men and vice versa and Who wants to marry my son.
Alessandro, Orlando, Cristian, Lorena Lara and Fran are some that will be this track to demonstrate their sports skills.
Not the first time that an activity is performed to help Juanico is organized.
This Friday, for example, Lady Ma Belle takes the stage of the Pizzeria Roma to raise funds for this Cartagena.
The concert will begin at 21.30 hours.
AEDOM Vice President, Manuel Torres, also attended the presentation this morning and explained the day to day Juanico, since 4 years has been living with this disease.
Last year he transplanted kidney and now each month goes to Valencia for you review your doctor. Though you have to take 40 medications a day, is a cheerful who likes live boy commented brother Fulgencio. will be in late June when a prestigious doctor come to Canada to see the little Cartagena and to treat Juanico.
Source: Ayuntamiento de Cartagena
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