Portal de Cartagena
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This Friday, May 12, marks the 25th anniversary of its recognition as a clinical entity in the international classification of diseases by the World Health Organization (WHO). Associations affected by it celebrate a day with various activities to raise awareness.
One of these acts has been the reading of a manifesto that has taken place in the Regional Assembly, at 12.00 hours, in which the Mayor of Cartagena, José López, was present;
The councilman of the Area of ​​Quality of Life, Francisco Calderón;
The mayor of Social Services, Carmen Martín and the councilwoman, Florentina García Vargas.
In the reading of the manifesto have participated the president of the Fibromyalgia Association of the Region of Murcia (Fibrofamur), Amparo Ayala;
And the founding partner, Toñi Díaz, who have claimed the chronic nature of fibromyalgia.
Thus, Ayala recalled that this disease is characterized by generalized pain, muscle stiffness, cognitive and emotional disorders, unrepairable sleep, sensory hypersensitivity and a "deep and exhausting" fatigue, while remembering that the cause of This disease and that there is no cure treatment.
The highest incidence rate is in women between 30 and 50 years old, affecting a percentage of the population that ranges from 3% to 6%, and may appear associated with other pathologies such as Chronic Fatigue Syndrome, Sensitivity Multiple Chemistry or Electromagnetic Hypersensitivity.
The mayor has shown his solidarity with the people who face this chronic disease and pointed out that "increasingly growing" those who suffer "without being well treated as other diseases," while remembering that the competencies in Health Depend on the Autonomous Communities.
Thus, during the reading of the manifesto has been considered as an important achievement of these 25 years that "it has been possible to single out a disease now considered a paradigm of chronic pain and introduce it into social, professional and political agendas."
Among the priority claims are recognition by professionals, institutions, social agents and society in general;
Research to achieve better diagnosis, treatment and early detection;
The improvement of health care and the establishment of unified protocols that guarantee the equality in the quality and the accessibility to the resources and services of the Public Health System;
Access to work, either through the adaptation of jobs or through new forms of labor insertion and the granting of a fair social benefits when the disease prevents a work.
At the same time, Diaz recalled that the main problems faced by patients with Fibromyalgia "are the result of not fit into a health and social system prepared and directed, preferably, to treat acute processes and assess disabilities based on poor parameters Qualified and prioritized as objectifiable, keeping the invalidating character of pain invisible ", ignoring that it" is a determinant parameter in the quality of life of a person. "
Finally, the manifesto has looked to the future "with renewed decision and new objectives and challenges", calling on entities, professional associations, scientific societies, administrations and political leaders to join the demands of this group and, in this way, "endow To the citizens of the best quality of life possible within the framework of a fair, accessible, equitable, equal and quality health and social system ".
OTHER ACTIVITIES OF THE WORLD FIBROMYALGIA DAY AND CHRONIC FATIGUE SYNDROME
The Association of Fibromyalgia of Cartagena (Afibrocar) has set up a series of informative tables on the disease and activities of the association, which are distributed throughout the municipality, such as the Town Hall Square, Regional Assembly, Plaza Juan XXIII, Santa Lucia Hospital, Rosell Hospital, San Vicente Health Center - Old Town and Health Center of La Concepción Neighborhood.
The end of the day will come with the Charity Gala of Afibrocar, to be held at the Cultural Center Ramón Alonso Luzzy from 19:00 hours, with the collaboration of the City of Cartagena.
The event will count on the participation and collaboration of Adrián Ruiz, the Nuria Mas Dance School, 'Ritmaco' - Pupils 'Abellán Method' and the Pikú Orchestra.
Source: Ayuntamiento de Cartagena
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