Portal de Cartagena
www.portaldecartagena.com
The Portman Nautical Club organizes a new edition of the Solidarity Regatta 'Carburo de Plata', in which this year the 'Enrólate' campaign is organized and will be held from 2 to 4 June in order to raise funds that will go to The Association of Rare Diseases D'Genes, in an event in which the City of Cartagena will also collaborate.
This was confirmed by the Mayor, José López, on Wednesday, March 1, after the meeting with councilors of the Quality of Life and Sports area, Francisco Calderón and Ricardo Segado;
The president of the Association, Juan Carrión, and the president of the Portman Yacht Club, Blas Isaac Calventus.
During the meeting, the mayor confirmed the municipal collaboration with the solidarity test, while ensuring that "we were already committed to helping them like last year, because the more we can do from the City Council, the less expense it entails to the organization and More money will be left for this solidarity. "
In addition, Lopez has thanked the work of the Portman Nautical Club in organizing this sporting event and considered it "fundamental" to promote water sports, "so linked to Cartagena and the whole region."
In turn, he recalled the "high level" that was enjoyed in the last edition of this solidarity race and wished there is good time for "the three days of navigation can be concluded perfectly and that meals, barbecues and dinner Of gala are a great party of the candle with a good solidary end ".
For his part, the president of the Association D 'Genes has indicated that the benefits of the race will allow the entity that heads to establish in Cartagena "a delegation to directly serve people and families living with rare diseases."
In turn, Carrión thanked the "hospitality" of the mayor and the solidarity of CN Portman.
Similarly, the president of the association 'D'Genes' said that "today have taken the first steps to work in conjunction with the City Council and Cartagena has a multidisciplinary center of care for people and families with rare diseases."
And I know that, the collection of this solidarity race will go to the implementation of this project.
A disease, said Carrión, is considered rare when it affects a limited number of the total population, defined in Europe as less than one for every 2,000 citizens.
Between 6% and 8% of the world population is affected by these diseases, so that in the Autonomous Community is about 100,000 inhabitants, of whom 80% would already be diagnosed.
He also stressed that the association is already doing various solidarity activities in Cartagena throughout the year and are working on another project to travel to the area of ​​La Azohía.
These activities, he noted, "allow us to fulfill the purposes of this national association, but which has a special presence in the Autonomous Community, which already has a multidisciplinary care reference center for people with rare diseases and their families in Totana, in the coming months will open another in Murcia and will launch the third in Cartagena.
Finally, to questions from the media, the mayor of Cartagena has talked about various issues of current municipal and regional, such as the last preparations for this Ash Wednesday and the Easter Week to be held this Saturday, March 4;
A possible appeal to the Commission of prices for water tariffs with Hidrogea;
The declaration of Federico Trillo as non-grata person for the city of Cartagena;
The need to eliminate level crossings, which must be dealt with by Adif;
The political situation of the president of the CARM, Pedro Antonio Sánchez;
Or the recent meeting with workers of the Water Service, which took place this Tuesday, February 28
Source: Ayuntamiento de Cartagena
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