Portal de Cartagena
www.portaldecartagena.com
Every June 21, since 1997, is celebrated the World Day of Amyotrophic Lateral Sclerosis or commonly known as the ALS, a degenerative and disabling disease that is characterized by a progressive atrophy of all the muscles of the body and that affects approximately 4000 Spanish .
On this day, a large number of activities are held around the world in order to keep alive the search for the cause, treatment and cure of this disease.
The City of Cartagena joins one more year to the #LuzporlaELA Campaign, in which almost 250 buildings and monuments of more than 150 City Councils will light up green on the night of June 21.
This time, in the port city, the fountain of the Submarino Peral will be illuminated and, in addition, a stand will be installed in the Plaza del Ayuntamiento, which will serve as an information point to give visibility to this pathology and to the Association ELA Región de Murcia, founded in 2018
In addition to Cartagena, cities such as Madrid, Barcelona, ​​Toledo, Ciudad Real, Murcia, Alicante, Valencia, A Coruña, Seville, Granada, Palma de Mallorca, Badajoz, Santander, Pamplona, ​​Vizcaya, Oviedo, Santa Cruz de Tenerife or Zaragoza and the 15 World Heritage cities of Spain (Alcalá de Henares, Ávila, Baeza, Cáceres, Córdoba, Cuenca, Ibiza, Mérida, Salamanca, San Cristóbal de La Laguna, Santiago de Compostela, Segovia, Tarragona, Toledo and Úbeda) will light up green its most emblematic buildings and monuments.
This year as a novelty will illuminate the Congress of Deputies and the Palace of the Stock Exchange of Madrid, as well as, the Colombian cities of Bogota, Cali and Medellin.
These informative activities are organized by the Luzón Unidos Contra ELA Foundation, together with the different regional associations of Relatives and Patients, which make up the Community of ELA.
ON THE AMIOTROPHIC LATERAL SCLEROSIS (ELA)
Amyotrophic Lateral Sclerosis (ALS) is a degenerative neuromuscular disease in which the cells that control the movement of the voluntary musculature diminish their functioning gradually and die, causing a progressive paralysis of the affected person in a short space of time, preventing them from smiling, talk, eat, move or breathe on their own.
The average life expectancy of patients usually does not exceed five years.
There is no treatment against ALS, although there are drugs and therapies to combat their symptoms (respiratory disorders, sleep disturbances, cramps ...).
In Spain, it is estimated that each day 3 new cases of ALS are diagnosed, 1000 per year, the same as those who died.
The number of people affected today is around 4,000.
Between 90 and 95% of cases occur randomly as a 'sporadic ALS'.
Only 5-10%, these are cases of 'family ELA'.
The average age of onset of ALS is between 60-69 years, but in Spain, they are seeing much earlier cases, from 40 years.
Source: Ayuntamiento de Cartagena
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