Portal de Cartagena
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- Cs Cartagena announces efforts to promote the creation of a Specialized Unit in the Region of Murcia
Cartagena, Tuesday, March 26 -.
"We are afraid and we want to be removed from here", has been the most repeated demand by the board of directors of the Association of Fibromyalgia and Chronic Fatigue Syndrome of Cartagena and Comarca in the meeting that they held today with the spokesperson for Citizens in Cartagena, Manuel Padín, at the headquarters that this group has on Grecia Street in the Virgen de la Caridad neighborhood.
The president of Afibrocar, Flori Galindo, reported that a few days ago they shot the door of the store with pellets.
The signs of the impacts remain in the glass of the entrance, "if more partners do not come to participate in our activities is because they are afraid, we have asked the City Council to help us find a new location."
Manuel Padín has been able to verify that "the environment of the property of municipal ownership is also surrounded by improvised landfills full of remains that nobody has been cleaning or collecting for months, one of them is attached to a sports court that is in a complete state of abandonment ".
"The City Council must take care of all common public spaces and guarantee security, but those that are located around the premises where important groups such as this work, or around educational centers such as the Polytechnic Institute, should be a priority", defends the spokesman of the liberal party.
Cs Cartagena has collected the needs of the Association and has committed to take them into account in its electoral program, "among other things, we will strengthen information and awareness campaigns, initiate the necessary political steps to promote the opening of specialized consultations in the Area II and recover the conversations with the SMS so that this association can use the hyperbaric chamber located in the Hospital de Caridad, better known as Los Pinos for the benefit of those affected by this disease, "said Padín.
Specialized Unit
The spokesman of Cs Cartagena has also announced that he will work for his party to promote the launch of a specialized and multidisciplinary regional unit, "and end the endless pilgrimages in search of a diagnosis, a help, a response that never appears; Currently some health centers refer their patients to this association when it should be the opposite, this group should refer cases that attend a referral center where knowledge is centralized with specialized professionals, these patients, between 25,000 and 30,000 in this Community, they feel unassisted and abandoned. "
War against the negationism of the INSS
Afibrocar, together with the remains of national associations, is facing the recent publication of the Guide for the assessment of fibromyalgia, chronic fatigue syndrome, multiple chemical sensitivity, electrosensitivity and somatoform disorders.
This document, written by the National Institute of Social Security (INSS) and the Spanish Society of General and Family Doctors, is perceived by the groups and associations as "a denialist insult, and a strong setback for the work that for so many years has come developing for the recognition, visibility, and improvement of the quality of life of those affected ", explains Manuel Padín who has been able to consult the document and will send in the coming days the impressions collected to his Parliamentary Group and the area of ​​Citizen Programs at a regional level to evaluate their content and analyze the possibility of promoting political actions to demand their revision.
At this time all the associations and coordinators linked to these diseases are working in a coordinated way at the national level to demand a new Guide for the serious damages that the current one, developed behind the backs of the sick associations, could cause the patients to be grounded. in information that they consider "erroneous and harmful".
Fibromyalgia is a chronic pain process, widespread and preferably osteomuscular location that was recognized as a rheumatological disease in 1992 by the World Health Organization.
Regional Plan approved thanks to Cs
The Health and Social Affairs Committee of the Regional Assembly approved on February 20 an initiative of Citizens to proceed with the adoption of measures for the diagnosis and social and health treatment of patients with fibromyalgia.
Cs achieved sufficient support to launch a Regional Plan involving professionals from Primary Care, Rheumatology, Mental Health and Health Management.
"The lack of specialized medical training and the low level of resources for research into the physiological mechanisms involved in this disease is making it difficult to diagnose and treat them," said Manuel Padín, who affirms that "many people affected by this disease lose their jobs. , something that especially affects women, 85% of cases. "
Under the approved initiative, the update and implementation of the specific protocol made 9 years ago will be promoted, training actions will be implemented for health professionals, educational campaigns, informative talks, conferences and awareness actions aimed at the general population, so as to promote early diagnosis, especially in children and adolescents, using scientifically validated criteria.
Source: Ciudadanos Cartagena
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