Portal de Cartagena
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The City of Cartagena has shown its support to those affected by Crohn's disease and ulcerative colitis in Cartagena.
Taking advantage of the fact that the World Day of Intestinal Inflammatory Disease was celebrated on Saturday, May 19, the manifesto was carried out to demand measures that contribute to the improvement of the quality of life of these patients.
The mayor of Cartagena, Ana Belén Castejón, has accompanied on Tuesday, May 22, the members of the delegation in Cartagena of the Association of Crohn's Disease and Ulcerative Colitis (ACCU) among those who were, Diego Miñarro and Juana Madrigal , vice president and spokesperson, respectively, of the association.
The mayor Ana Belén Castejón said, at the ceremony held in the Hall of Reception of the Palace Hall, that the City wanted to show their support and give visibility to this disease "that does not occupy many headlines, nor calls the attention of society, to Although it affects the daily lives of those affected in a decisive way ".
Castejón has stated that supporting Crohn's patients was a pending issue of the City Council since they contacted the municipal government demanding the involvement of the institution last March.
The solidarity support for this disease was requested through a motion proposed by the Citizens group on April 27, 2017, which was approved unanimously in the plenary session of the municipal corporation.
The motion requested the adoption of measures to contribute to the improvement of the quality of life of patients with Crohn's disease and ulcerative colitis in Cartagena.
"As a local administration, the closest to the citizen, we assume that commitment, so that last Saturday, May 19, international day of the disease, and taking advantage of the Night of the Museums was illuminated the Consistorial Palace purple", has declared the councilor.
The mayor wanted to read the manifesto for which he has requested the presence of the spokesman of the municipal group Citizens, Manuel Padin, so that together with Diego Miñarro and Juana Madrigal of the Association of Crohn's Disease and Ulcerative Colitis (ACCU) in Cartagena , proceed to disseminate the manifesto composed of ten points.
MANIFEST
Early diagnosis, immediate attention and direct access from the emergency department to the specialized consultation.
An attention in reasonable times can suppose a substantial change in the health of the patients and the sustainability of the National Health System.
Multidisciplinary approach to Crohn's disease and ulcerative colitis with more specialized units formed by a team of different professionals specialized in inflammatory bowel disease.
Easier and faster access to the services of Clinical Psychology of the National Health System.
The disease, due to its chronic and unpredictable nature, affects patients in a very important emotional level.
More investigation of the causes of this pathology and greater access to novel and innovative treatments.
Recognition of inflammatory bowel disease as a disabling pathology, when requesting a disability or incapacity for work.
Many patients are affected by inflammatory bowel disease and other diseases at the same time and, in most cases, they are not recognized any type of disability despite crediting the problems they produce.
Greater support and recognition of the disease in public and private organizations and greater participation of patients in making decisions regarding our rights, well-being and quality of life.
Access to public restrooms without having to give explanations and to park a limited time restricted areas when the need arises with the implementation of projects similar to those that already exist in several provinces and autonomous communities.
Support from all levels of the educational system to encourage children with inflammatory bowel disease to maintain their educational development despite the needs and limitations that their pathology can generate to ensure a future as promising as the rest of their peers.
Legislation that recognizes the situation of people with chronic diseases, such as crohn and ulcerative colitis.
Each day, these people face the symptoms of diseases that have no cure and, also, the impact they generate in their lives at a psychological, social, economic, educational, work and family level.
Promote access and permanence in the labor market to patients.
A large number of people affected by crohn or ulcerative colitis see their working life limited with the repercussions this can have on their economy and their personal lives.
Therefore, it is important that a commitment is made by the different agents of society to generate measures that guarantee the employability of patients.
Source: Ayuntamiento de Cartagena
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